Events that inspire and connect us on a deeper level.
Join us for on-line and in-person events.
Events Schedule
Current & Upcoming Events
[Educational Webinar]
Ready Position: Identifying and Supporting the Unique Needs of PANS PANDAS
Thu, Apr 25, 2024, 7:30 – 9:00 PM (EST)
Guest presentation and Q&A with Emily Bennett, MSW, RCSW
Join us for a free webinar with Emily Bennett, clinical social worker and synergetic play therapist and parent to 2 PANDAS kiddos. This webinar is for parents, caregivers, grandparents, teachers or anyone who wants to get a deeper understanding of the impact that PANS PANDAS can have on children and their family.
Register here
Steppin’ Out for PANS PANDAS 2 & 5 km Walk (Canada-wide)
Sat, Sept 21, 2024, 1:00 – 3:00 PM
PANS PANDAS is no walk in the park… but this fundraiser is.
The Inflamed Brain Alliance is hosting a 2 & 5 km walk in Bowness Park (Calgary, AB), in Ontario (location TBD), and virtually across Canada on Sat, Sept 21 between 1-3 PM. Please join us to kick off our 2nd Annual Steppin’ Out for PANS PANDAS fundraiser walk by ‘steppin’ out’ on a local park trail across Canada.
Light-Up for PANS PANDAS (Canada-wide landmark lighting)
Wed, Oct 9, 2024, ~7:30 PM (or dusk)
To honour World PANS PANDAS Awareness Day, over 60 landmarks across Canada (from the Legislative Assembly in Victoria, BC to the Cabot Tower Signal Hill in St. John’s, NL) will be lighting-up #Red4PANS. IBA’s Light-Up for PANS PANDAS initiative aims to shine a light on PANS PANDAS, fostering greater understanding and highlighting the pressing need for more resources and support.
Past Events
[Educational Webinar]
Understanding and Managing Caregiver Trauma Associated with PANS PANDAS
Thu, Feb 29, 2024, 7:30 – 9:00 PM (EST)
Guest presentation and Q&A with Sheilah Gauch, LICSW, M.Ed
In IBA’s inaugural educational webinar, Sheilah Guach will discuss the barriers that caregivers of children with PANS PANDAS face trying to care for and support their children.
Register here
Light-Up for PANS PANDAS (Canada-wide landmark lighting)
Mon, Oct 9, 2023, ~7:30 PM (or dusk)
To honour World PANS PANDAS Awareness Day, over 60 landmarks across Canada (from the Legislative Assembly in Victoria, BC to the Cabot Tower Signal Hill in St. John’s, NL) will be lighting-up #Red4PANS. IBA’s Light-Up for PANS PANDAS initiative aims to shine a light on PANS PANDAS, fostering greater understanding and highlighting the pressing need for more resources and support.
Steppin’ Out for PANS PANDAS 2 & 5 km Walk (Canada-wide)
Sat, Sept 23, 2023, 2:00 – 4:00 PM
PANS PANDAS is no walk in the park… but this fundraiser is.
The Inflamed Brain Alliance is hosting a 2 & 5 km walk in Bowness Park, Calgary, AB and virtually across Canada on Sat, Sept 23 between 2-4 PM. Please join us to kick off our 1st Annual Steppin’ Out for PANS PANDAS fundraiser walk by ‘steppin’ out’ on a local park trail across Canada.
“In a Squeeze” Lemonade Stand Challenge (Canada-wide)
Summer 2023 (June 21 – Sept 21)
We’re taking a stand against PANS PANDAS one cup of lemonade at a time.
Your “In a Squeeze” lemonade stand fundraiser for Inflamed Brain Alliance (IBA) will help ensure all kids with PANS PANDAS have the chance to get the diagnosis & care they need. By holding a stand in your community, you’re raising important awareness and financial support for this little known disorder. Thanks for helping PANS PANDAS kiddos & families “In a Squeeze.” Have fun with your friends “taking a stand” with IBA this summer! Let’s do this!
Find/organize a picnic in the park:
- Check our website to confirm a peer support group exists in your area and email the chapter lead for picnic details.
- Support group doesn’t exist in your area? See if you can find other P/P families you know to gather.
- Not connected to any local P/P families yet? See if you can gather a group together by asking families in your regional P/P Facebook support group: BC, Prairies, Ontario.
Picnic in the Park (Canada-wide)
Sun, July 23, 2023, 4:00 – 7:00 PM
Join us for IBA’s inaugural Picnic in the Park! Summer is the perfect time to bring our families together to build strong & connected communities of support. IBA is inviting all Canadian PANS/PANDAS families to get together in-person on July 23, 2023 from 4-7 pm at local parks across Canada. Bring your lawn chairs, blankets, games and a potluck dish to share.
If you’re hosting a picnic please email Nancy with your event details as seen below:
city/town & province | picnic location | date & time | RSVP email and your name
As soon as we have your details, we’ll add you to our confirmed picnic locations below. This’ll be a great way to bring our community together across Canada!
Picnic locations confirmed:
Calgary, AB | Bowness Park | July 23, 4-7 PM | RSVP | add to Google Calendar
Milton, ON | Brookville Park | July 23, 4-7 PM | RSVP | add to Google Calendar
Spruce Grove, AB | Jubilee Park | July 23, 4-7 PM | RSVP | add to Google Calendar
more coming soon…
[Zoom Meeting]
Inaugural Chapter Lead Meeting
Thu, Mar 23, 2023, 6:00 – 7:00 PM MDT
IBA’s Inaugural Chapter Lead Meeting for all confirmed Chapter Leads will be held on Thurs, Mar 23. If you’re interested in becoming a Chapter Lead, our National Lead of Peer Support Chapters, Nancy Lawrynowicz, would love to connect, your involvement with our IBA community is valued. If you go to IBA’s website under the Chapter Lead web page you’ll find a Hubspot sign-up form. Please fill out the form and Nancy will be in touch with you ASAP.
[Live Webinar]
Introduction to Inflamed Brain Alliance & Peer Support
Thu, Jan 12, 2023, 6:30 – 7:30 PM MDT
Join us for a virtual introduction to the Inflamed Brain Alliance. We’re a new Canadian charity on a mission to serve and unite those within and beyond the PANS/PANDAS community to improve health, deliver education, and accelerate research. In this inaugural webinar you’ll meet the co-founders as they share about the charity’s origins and upcoming program developments. You’ll also hear exciting peer support plans from our National Lead of Chapter Groups.
Erich Herchen & Guests Piano Concert:
An Inflamed Brain Alliance Fundraiser
Thu, June 9, 2022, 7:00 – 9:00 PM MDT
Enjoy an unforgettable evening in support of IBA with gifted Calgary pianist Erich Herchen, and guests Riley Ngo and Colleen Athparia.
Join us in helping launch Canada’s first national PANS/PANDAS charitable organization, Inflamed Brain Alliance, working to restore brain health for people impacted by PANS/PANDAS.